Your feedback is vital to us as we continue to increase the quality of our services.
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Date: 1 December 2020
What is transition?
Transition is a process of planning and preparing for you to move from the children’s centre to the adult haemophilia unit, which happens when you are 17 or 18 years of age. If you would like to come and meet us at QEHB before your transition appointment, then please give the unit a call and we would be more than happy to arrange this.
Transition is important to your care - as you grow into a young adult, an adult centre is the best place for you to be seen, reviewed and treated.
You may be ready to move to the adult centre at time of transition and feel that this is the right time for you. Others may find this daunting and not feel ready, please be assured that the team at the centre aim to be as helpful as possible and will do their utmost to make the transition as smooth as possible.
What will happen?
On your first clinic to the adult haemophilia centre you will see your new haematology doctor, followed by a clinical nurse specialist. You can bring someone with you to your first clinic review, as we know this can be a daunting experience.
Who can you talk to about transition?
If you would like to talk to one of the nurses about your transition, please feel free to call the centre and we can discuss any queries and concerns you may have. Contact details are available via the "Contacts and how to find us" link at the end of this page.
How will the adult service be different?
At the adult service, after your first appointment you are encouraged to attend the clinic without a friend or relative so that you take ownership of your own condition - we want you to be involved and keep yourself well.
We encourage you to ask questions and make sure that you are happy with the care you receive. It may be useful if you bring a list of questions with you to your appointment, one of the team can go through them with you.
What will your responsibilities be?
If you have home treatment then it is important that you order your treatment whether this is from a home delivery provider or from the nurses at the centre to collect from pharmacy. You will also need to call us to order any ancillaries, such as sharps bin, needles etc. which you can collect from us if you do not have your treatment delivered. Try to take responsibility to know what medication you are on and what your diagnosis is.
If you need to change your clinic appointment, we ask that you phone and speak to our friendly secretary who will be more than happy to help. You should also know how to contact us out of hours and what to do in an emergency.