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Date: 1 December 2020
Action on Pain (AOP)
AOP is a national charity providing support for people affected by chronic pain, either as a sufferer or a carer/relative.
Telephone: 01760 725993
Helpline: 0845 603 1593
A support group for people with arthritis.
Telephone: 0121 475 2959 / 0121 382 6143
Behçet's Syndrome Society
The Behçet's Syndrome Society aims to provide support and information for sufferers and their carers. The society provides financial aid for sufferers in need.
Behçet's Syndrome Society
43 Parkgate Crescent
Herts, EN4 0NW
Helpline: 0845 130 7329
Birmingham and West Midlands Pituitary Group
As part of The Pituitary Foundation, the group offer support and information to pituitary patients, their relatives, friends and carers.
The group hold three to four meetings a year on Saturday mornings at QEHB. Meetings feature a guest speaker discussing topics that patients will find interesting and helpful.
For more information about the group, including dates of future meetings, please visit:
Birmingham Arthritis resource Centre
The resource centre is located at Birmingham Central Library, Chamberlain Square, Central Birmingham.
Telephone: 0121 464 2708
Brain Tumour UK Support Group
The Birmingham support group is open to brain tumour patients, carers and family members and provides support, information and an opportunity to meet with others.
The group meet on the third Monday of every month between 12:00 and 14:00 in the Education Centre at the Queen Elizabeth Hospital Birmingham.
For more information on the support group please contact Sue Wreglesworth or Rosemary Wormington:
Telephone: 07717 175 236
Telephone: 07546 912 594
The Breathe Easy support group is for anyone living with lung disease. The South Birmingham group meet once a month at Moseley Hall Hospital from 14:00 – 16:00.
For more information on Breathe Easy and the British Lung Foundation, see the link below or call 03000 030 555.
British Sjogren's Syndrome Association
Support group for sufferers of the auto-immune rheumatic disease.
Telephone: 0121 455 6549
Support group for people with stomas and bowel disease.
Telephone: 0121 442 3680 (answer phone)
Cystitis & Overactive Bladder Foundation
946 Bristol Road South
Birmingham, B31 2LQ
Telephone: 0121 476 1333
Diabetes UK offers regular support group meetings in Kings Heath for people with diabetes, their family members and friends. For further information on the group, please see the Diabetes UK Birmingham Voluntary Group website or contact Rachel Tier.
Telephone: 0121 475 4275
Have you, or someone close to you, been diagnosed with epilepsy? If so, the Epilepsy Action group meet in the Cafe of Solihull Library & Arts Complex for tea, coffee and a chat.
If you want to meet and talk to other people living with epilepsy, please join the group on the second Saturday of every month from 14:00 – 16:00.
For more information contact Julie Clark:
Telephone: 01684 577 554
The Get A-Head patient group is a local support group that runs quarterly events held in the Outpatient Department at the Queen Elizabeth Hospital, Birmingham on the first Wednesday of February, May, August & November from 17:00 – 19:00.
The group talk about things that have affected them personally and also work on a patient newsletter that is currently being produced twice a year.
The patient group also plan events and meetings for patients and family to get together, such as coffee mornings, golf days, pub lunches and the annual patient Christmas party.
Any patient and their family & friends are welcome to join.
To get in touch please email the Get A-Head Charity Office and they will pass your details onto the group.
Grown-up Congential Heart Patients' Association
Supports young people and adults born with a heart condition.
Telephone: 0800 854 759
The Haemochromatosis Support Group was setup to fill the gap in the provision of care for patients with the condition in the West Midlands area. The group have regular meetings which include guest speakers in an informative but informal manner. For information on the group's next meeting please see the contact details or website below:
Telephone: 0121 457 8986
Aneurysm and arteriovenous malformation support group. Meetings are held on the first Friday of the month between 19:00 and 21:00 in the Seminar Room, Imaging Department, Level 0, QEHB.
Telephone: 0121 459 7147
Acquired brain injury drop-in service at the Queen Elizabeth Hospital Birmingham. Call in on Wednesdays:
- 13:30 – 16:30, Wards 407, 409, 411
- 16:30 – 17:30, Plaza Restaurant
Telephone: 0121 457 7541
Heart to Heart
The cardiac patient group meets in the Queen Elizabeth Hospital boardroom on the first and third Tuesday of every month.
Telephone: 0121 371 2000
Kidney Cancer Support Network (KCSN)
A patient-led kidney cancer charity offering support and information.
Telephone: 01209 890326
Kidney Patients' Association
Runs local groups across the West Midlands.
Telephone: 01922 644 982
Laryngectomy Support Group
Meets monthly at British Legion social club, Quarry Lane, Northfield. A patient-led group with organised speakers at each session.
Telephone: 0121 371 3412
Let's Face It
Support group for people with any form of facial disfigurement.
Telephone: 01843 833 724
MD Junction Lupus Support Group
A community of patients, family members and friends dedicated to dealing with lupus together.
Military patients will be visited by a representative from the Royal Centre for Defence Medicine (RCDM) who will attend to their administrative, welfare, pastoral and spiritual needs.
National Rheumatoid Arthritis Society
The National Rheumatoid Arthritis Society provides support and information for people with rheumatoid arthritis and juvenile idiopathic arthritis, and their families, friends and carers.
National Rheumatoid Arthritis Society
Unit B4 Westacott Business Centre
Telephone: 0845 458 3969
Helpline: 0800 298 7650 (UK only)
Pain Association of Scotland
The Pain Association recognises that it is not only pain sufferers who experience distress, but carers, relatives and friends may also need support.
Telephone: 0800 783 6059
Pain Concern is a charity working to support and inform people with pain and those who care for them, whether family, friends or healthcare professionals.
Tel: 0300 123 0789
Pain Relief Foundation
The Pain Relief Foundation is a UK charity which funds research into the causes and treatment of human chronic pain and is concerned with education of doctors and nurses in pain management.
Tel: 0151 529 5820
Parathyroid UK is a small charity for people living with rare and hidden parathyroid disorders. It is the only patient organisation in the UK and Ireland devoted specifically to their needs.
Parkinson’s UK is the Parkinson's support and research charity bringing people with Parkinson's, their carers and families together via their network of local groups, online resources and confidential helpline. They provide information and support on every aspect of living with Parkinson's.
Tel: 0808 800 0303
QE Liver Transplant Support Group
The group meets at 19:30 on the third Monday of every month (except July and August) in the Meeting Room, Faith Centre, Level 1, Queen Elizabeth Hospital Birmingham.
Roy Castle Lung Cancer Support Group
Held first Tuesday of every month, Birmingham Heartlands Hospital.
Telephone: 0121 424 1433
South Birmingham Lung Cancer Support Group
For lung cancer and mesothelioma patients, relatives and carers. Starts 13 January 2014. Second Monday of every month, 13:30 – 15:00.
Quaker Friends meeting House
930 Bristol Road South
Birmingham, B29 6NB
Contact Carolyn Russell, Sophie Phillips or Marie Wilding.
Telephone: 0121 371 4831 / 4832
The National Osteoporosis Society
The National Osteoporosis Society runs a local support group based in Birmingham.
Telephone: 0121 429 7366
The UK Sepsis Trust is a charity for anyone affected by sepsis, including those whose relatives have died.
Telephone: 08456 066 255
Vasculitis Support Group West Midlands (VSGWM)
Support group for sufferers of systemic vasculitis (e.g. Wegener's granulomatosis) as well as support for carers. The VSGWM circulates useful information and ideas, with friendly meetings held at least once a year.
Telephone: 0121 243 5621
West Midlands Lupus Group
A support group for people with systemic lupus erythematosus (lupus).
Telephone: 01902 498 236