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Freedom of information requests

FOI 4034 2023/24

Income from research for rare diseases services

Published 29 May 2024

Income from research for rare diseases services

Questions

Request the Trust to provide a spreadsheet detailing Trust income from:

  1. Research for rare disease services (as defined as a condition that affects less than 1 in 2,000 people) broken down by rare disease type
  2. Total research income

We would like to receive this data for the following years: 2018/19, 2019/20, 2020/21, 2021/22, and 2022/23 but a single year within this would be acceptable if that is all that is available

Response

  1. 2018/19

    2019/20

    2020/21

    2021/22

    2022/23

    £33,383.08

    £46,107.92

    £48.870.48

    £53,744.44

    16,403.21

     

    This only includes the income from Clinical research facility income.

  2. 2018/19

    2019/20

    2020/21

    2021/22

    2022/23

    £31.1 m

    £32.8 m

    £32.6 m

    £36.4 m

    £37.9 m