We are a European Neuroendocrine Tumour Society (ENETS) Accredited Centre of Excellence, based at Queen Elizabeth Hospital Birmingham (QEHB). We deliver specialist care for Gastroenteropancreatic Neuroendocrine Tumours (GEP-NETs) and Pulmonary NETs, offering specialist and complex services under one roof.
Our NET multidisciplinary team (MDT) is unique for treating NET, liver transplantation and carcinoid heart disease (CHD) patients. We also host the national liver transplant MDT for eligible NET patients.
What are neuroendocrine tumours?
- Relatively rare cancers but increasing in incidence. They now rank as the tenth most common cancer in England.
- Usually slow growing and can metastasise, most commonly to the liver.
- They can develop anywhere in the body but are most commonly found in the small bowel, lung, and pancreas.
- Some NETs may produce hormones that can cause other symptoms like diarrhoea and facial flushing (carcinoid syndrome).
- Some NETs will require treatment, which can sometimes include surgery, regular medication and follow-up with scans, blood and urine tests.
- When surgically removed, some NETs will not require any further follow-up.
- Some NETs are fast-growing. These are called neuroendocrine carcinomas (NECs) and are a separate group of cancers that are managed by oncology teams.
What to expect after referral
Once we receive your referral, your case is reviewed at the NET MDT meeting each Thursday afternoon. Complex cases involving heart or liver transplants will be discussed at our focused MDTs. Recommendations are shared with your referring team, who will update you at your next clinic. Occasionally, we may invite you to visit our centre to discuss your care plan in person.
Treatments and support services
We deliver the latest cancer treatments to patients, including:
- medical treatments for NETs
- highly specialised cancer surgery
- CHD surgery
- liver transplantation for NETs
- nuclear medicine treatments such as lutetium radionuclide therapy
- targeted chemotherapies such as everolimus, sunitinib, capecitabine and temozolomide
- complex radiological interventions, including radiofrequency ablation and trans-arterial embolisation
- urology services
- genetic NETs such as multiple endocrine neoplasms (MEN), paraganglioma or pheochromocytomas
- gastroenterology, complex nutritional support service
- NET dietician support
- emotional support services
Our clinics
Carcinoid Heart Disease (CHD)
CHD affects some patients with NETs, requiring careful cardiac assessment and treatment. Our dedicated CHD MDT clinic which is based in the Centre for Rare Diseases (CfRD) at Queen Elizabeth Hospital Birmingham (QEHB).
NET liver transplantation
We manage liver transplantation referrals through our dedicated NET Liver Transplantation MDT, also based at the CfRD at QEHB.
Clinic location and times
- NET clinic, QEHB: Monday mornings
- CHD clinic, Centre for Rare Diseases (CfRD): Fourth Monday afternoon of the month
- NET clinic, CfRD (with specialist NET dietician support): Tuesday afternoon
- NET Transplant Oncology Clinic, CfRD: Fourth Wednesday of the month
NET MDT meetings
- Main NET MDT: Thursday afternoons
- GI surgical planning MDT: Monday mornings
- CHD MDT: First and third Thursday of the month
- Transplant MDT: Fourth Thursday of the month
Contact details
NET Clinical Nurse Specialist (CNS) and administration team
The team operates from Monday to Friday, 8:00-16:00
Please leave your name, hospital number, contact details, and reason for your call. We aim to respond within three working days.
Acute Oncology Services (AOS)
For any patients on anti-cancer treatment who suffer from:
-
a temperature of 37.5C or above
-
flu-like symptoms
-
shivers/chills or feel poorly
Please call the AOS 24-hour emergency helpline straight away on:
Support and information
Our service is supported by:
- Neuroendocrine Cancer UK: Based in the UHB Cancer Centre. Monday to Friday, 08:00-16:00.
- MyHealth@QEHB: A patient portal for viewing appointments, clinic letters, and routine test results
Last reviewed: 13 October 2025