UHB leads initiative to improve understanding of treatment information needs
Published on 17/02/2026
University Hospitals Birmingham (UHB) is leading a new initiative to better understand the treatment information needs of people living with inherited bleeding disorders across the Midlands.
The Bridging the Gap service evaluation, which launched last month, is being delivered in partnership with the haemophilia comprehensive care centres at University Hospitals of Leicester (UHL) and Nottingham University Hospitals (NUH), with UHB acting as the host site.
The project was made possible through the leadership of Dr Gill Lowe, Consultant Haematologist at UHB, alongside her peers Dr Stella Salta (UHL) and Dr Emily Millen (NUH).
It is guided by a multi-disciplinary steering group, including patient representatives from across the region and coordinated by two experts: Laurence Woollard, MSc, Director of On The Pulse Consultancy, and Dr Rich Gorman, Social Scientist at Brighton and Sussex Medical School.
Dr Lowe said: “We know that access to clear, relevant information plays a vital role in supporting people to manage their condition and make informed decisions about their care.
“This evaluation is about listening to the experiences of people affected by bleeding disorders and understanding what needs to change, so we can improve how information is shared and discussed in routine clinical practice.”
People registered at one of the three centres are invited to complete a short, anonymous survey about their treatment interests and information preferences. The findings will help shape local service improvements and inform future initiatives to support shared decision-making.
The survey remains open until 28 February 2026.
You can take part by clicking the link below:
