Storing your data
All patient data collected from research studies is stored securely in highly controlled systems that meet strict legal and regulatory requirements, including NHS information governance standards and UK data protection law, ensuring confidentiality is protected at all times.
Access is tightly restricted to approved researchers with a clear and justified need, and is closely monitored and audited to ensure it is used safely and responsibly.
No data is shared without the necessary approvals in place, and individuals are informed about how their data may be used, who may access it, and for what purpose. This ensures people can make informed decisions and have confidence that their information is being handled securely and ethically.
Using your data
Data collected in studies helps expand treatment options by testing new approaches and comparing them with existing care, ensuring patients have access to the most effective therapies available. This evidence is essential for identifying what works best in real-world settings, not just in theory.
Research findings directly shape national guidance and clinical decision-making. Without this evidence, it would not be possible to confirm whether current treatments remain the best option or whether improvements are needed. Your data will therefore be used to challenge and refine standard practice, ensuring care continues to evolve.
Last reviewed: 27 August 2026